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Tongue Tie, Travesty & Love

This part 2 in my tongue tie series.

I need to once again make sure God gets mad glory for showing me the great and hidden thing that caused us so much turmoil and damage…the tongue tie, the thing that none of our pediatricians knew! God tore away the veil and showed me something that has been oppressing mothers and babies for generations in my family. Still it is troubling to wonder how it was possible for an OBGYN (which by the way our OB was an answer to another prayer!), postnatal nurses tasked to aide with breastfeeding, a lactation consultant (who was so caring and sweet), four regular pediatricians (one of which was also a certified lactation consultant who in addition to learning symptoms visually examined my damaged breast), ER staff, an intensive care unit pediatrician, a pediatric pulmonologist, wound care staff, therapists who were also really caring for Caleb but one of which we saw every week for feeding, my primary doctor (who I consulted for mastitis and breastfeeding problems), my dentist (who I asked about Caleb’s tongue thrust and who told me his wife had a similar breastfeeding experience and also had to supplement), a pediatric gastroenterologist, an internal medicine allergist, and a pediatric allergist…how could all of these medical professionals have missed Caleb’s tongue and lip tie? Not to mention all of the previous pediatricians and doctors for the family members who came before us (see post Great and Hidden Things)!?

The Travesty

While it is especially important that I reiterate that I do not want even a hint of bitterness or unforgiveness to be in my heart or words, I do feel the need to share the following, again not in anger or slander, but as a warning that will hopefully protect someone else’s life and well being. I seek to hide myself in Christ’s compassion, love and grace toward every person…

Firstly, the historical impact of the formula companies and the shift from midwifery to hospital births both have a lot to do with the devastating gap in knowledge and therefore a great lack in treatment. For decades the influence of the formula industry’s advertising as a viable alternative to mother’s milk resulted in pediatricians automatically referring mothers who experienced feeding difficulties to the bottle, that is if they hadn’t already chose the bottle due to cultural popularity. Even in early 2017, when I reached out to doctors I was never told about Human Milk 4 Human Babies or Eats on Feets, two ways I could have supplemented Caleb with donor breastmilk as I got my supply back up (I went from having chronic clogged ducts and mastitis to almost no milk at at all due to the tongue tie). I was simply told that if tolerated to get Similac Pro-Advance. As I noted in my first tongue tie post, formula companies began directly advertising to pediatricians in the 1940s and then in 1959 began even providing free formula to hospitals and pediatricians as part of their overall marketing strategy…which worked (1,2)! Breastfeeding had to be “saved” through counter movements such as the Nestlé boycott of 1977 (1). Although Caleb had extreme difficulties even with bottle feeding many tied babies are able to thrive with a bottle (not to mention all of the tied babies that can actually breastfeed!), as a result many tongue ties were not caught for decades and the training for how to screen for them became obsolete. At the same time more and more women were convinced that hospital births were safer and they began to entrust their deliveries to OBGYNs who were not trained to check for and cut tongue ties at birth. Historically midwives would cut the tie immediately to allow the newborn infant to suckle. Dr. Richard Baxter shares in his book “Tongue Tied”, that an obstetrician textbook from the 1600s specifically instructs how to check an infant for a tie at birth and if present calls for a surgeon to cut it. (3) Sadly, between the shift toward hospital births, a cultural pushback against all surgeries for a time that started in the 1850s (4) and the aggressive marketing of formula during the last century (1,2) the void in how to check for and treat ties was complete and too many pediatricians, OBGYNs, and both occupational and speech therapists to this day are still not properly trained in the subject of tongue and lip tie in school or fellowship. As a result most modern standards of care do not include a proper, if any, evaluation for tongue tie. An exception is in the country of Brazil where, by law, infants must be evaluated for tongue tie at birth. (5)

Before-the-1940s-tongue

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In addition to the lack of proper education the political hierarchy of the medical system gets in the way too. Dr. Ghaheri, an ENT who specializes in tethered oral tissues, shares that shockingly some hospitals today actually have gag orders on lactation consultants so they cannot tell a mother she and baby are suffering because of a tongue or lip tie (7)! This is incredulous and after having gone through the trauma I went through with my baby down right cruel and dangerously negligent. Primary doctors get offended when a lactation consultant catches the problem and “diagnoses” or even suggests/”refers” to a qualified ENT or dentist instead of letting the doctor do so (who again most likely lacks proper training). Even if the doctor were to make the referral it is important for the referral to be to an experienced release provider, not just any ENT or dentist. One significant marker of experience is the use of a laser or scissors without anesthesia. In the meantime while referrals to a preferred provider are being withheld or missed altogether babies are struggling to swallow, struggling to breathe, driving parents mad with colic and extreme sleep deprivation, being put on formula, prescribed proton pump inhibitors, having feeding tubes installed and being hospitalized for failure to thrive.

It is a travesty.

I have seen first hand these issues and the misdiagnosis my son having a restricted maxillary and lingual frenum from a handful of medical professionals, which led to a tonsil and adenoidectomy at the age of 2:11 because his tonsils and adenoids hypertrophied and caused obstructive sleep apnea, all were initially due to infant reflux which was caused by a restricted frenum and swallowing issues from birth… As an SLP, I was not taught how to accurately diagnose frenum restrictions and the impact even slight restrictions can have on the health and well being of an infant, child, or adult.” -Nicole Archambault Besson, EdS, MS, CCC-SLP (8)

But the damage doesn’t stop there, formula has been proven to create a completely different ecosystem in a baby’s gut with higher populations of pathogenic bacteria (9). Even if formula is not introduced, often times antibiotics or antacids are to address symptoms or conditions that tongue tie contributes to or even causes. These kill good bacteria and lead to candida overgrowth and low stomach acid (10) which also deeply changes the ecosystem of a baby’s gut. Both research and clinical evidence are increasingly linking the imbalance of the gut ecosystem to the development of neurological conditions like anxiety, autism, dyslexia and ADHD (11), to autoimmune conditions like fibromyalgia, lupus and Hashimoto’s (12) and to the development of immune system issues like allergies, asthma and intolerances (13)…and so much more.

Nutrition and Genetics

Sadly in addition to the influences above there seems to be an uptick in the occurrence of tongue tie overall and our diet plays a huge role. Specific vitamins, such as vitamin A, D and K2 are needed for the frenum to release properly in utero, especially vitamin A (14). Dr. Steven Lin recommends a diet high in grass-fed offal, eggs, oily fish and whole fat grass-fed butter or cream, as well as some carrots and spinach for 6 months prior to conception to try to prevent tethered oral tissues from forming in utero (14). Dr. Weston A. Price found that modern diets cause nutritional deficiencies that result in narrow mouths with crowded teeth (15). I wonder if what Dr. Weston A. Price found was actually that modern diets increase the occurrence of tongue tie because narrow mouths with crowded teeth and high palates are symptoms of…tongue tie.

Tongue-Tie-can-cause

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In addition to vitamins A, D and K2, midline defects have also been linked to a deficiency in folate. It is estimated that 40% of the world population has at least one MTHFR variant (17) making them unable to process the synthetic form of folate: folic acid…yes the same folic acid that every OBGYN is trained to make sure moms take in prenatals! I tested myself and Caleb. We are both homozygous MTHFR which is the most severe form of the genetic variation. We cannot assimilate folic acid and it actually clogs up our precious folate receptors…

We, as a society, simply cannot rely on a vitamin pill for nutrition, especially when it comes to the critical nutrition we need for our babies in utero. We cannot rely on a modern diet full of “instant meals” and packaged foods. We need to eat real unprocessed food planted, stored and prepared with ancient methods like anaerobic fermentation. The Great Physician had it right all along. He didn’t create us first and then make us wait 5,000 years before we finally had the technology to build factories to create synthetic vitamins for our pregnant mothers. He gave us bioavailable nutrient dense foods from the beginning to create healthy babies.

Tongue tie has had a detrimental affect (one that we are overcoming in the name of Jesus I should add) on the health of my son, myself and my family members through the resulting recommendations of formula, invasive diagnostics and various “medicine” prescriptions, this on top of the damage from our standard American diet which played a role in it’s formation to begin with! We are made in God’s holy image and how we treat that image and what we feed that image really does matter.

A tiny string under the tongue is a testament to that.

Love or Anger

The implication of a tongue tie that is not caught at birth can be horrific on so many levels for not only quality of life and health, but also simply the ability to survive and thrive. This is in addition to the heartbreak associated with not being able to breastfeed, or the violated feeling that comes from having the micro-biome (the one that I worked so long and hard to pass on through an all natural labor) hit hard by unnecessary antibiotics just seven days later. When our ability to thrive and survive is threatened or when our gut ecosystem suffers we can become bogged down in ways that can directly thwart our God-given destiny (see post Bagworms). In light of all of the damage and trauma that tongue tie can cause it is easy to grow angry or bitter at industries or even certain people…but really there is only one true common enemy throughout—THE enemy. The efforts to convince people to eat processed foods are immense and how about the efforts to convince mothers to not breastfeed their own children which has been going on for centuries, think of the popularity of wet nursing before formula and bottle feeding became all the rage (2).

In his booked called “Love Never Fails” (18), Kenneth Copeland points out that when Jesus’ cousin and close friend John the Baptist was beheaded Jesus withdrew for prayer but was followed by the crowds. During this deeply emotional time the Bible says that Jesus responded with compassion and healed the sick. He didn’t lash out in anger or condemning words toward Herod or just ask the crowds to be leave him alone, instead he ravaged the kingdom of darkness with love and compassion because He knew that the real enemy wasn’t Herod or Herodias, it was Satan. When someone we love is deeply damaged by misguided nutritional or medical advice we can respond with sorrow and anger especially when the trauma is deep or when we are constantly reminded daily of the damage that was done to our child’s body. In the strength of Christ though we can respond in love which allows the true enemy to be stopped in His tracks. When we respond through faith in the love and grace of Christ the enemy can’t find any new footholds to stand on. Loving our enemies requires faith and as I am learning dying to myself. It is one thing to be polite or nice toward someone who openly opposes the truth and gaslights you in a detrimental fashion, but to love them!? However, I have to keep on reminding myself that when I step out in faith that faith forms a shield of protection against the enemy’s fiery darts. If I have learned anything it is that I really need that shield cause those darts are real and they can hurt us or our loved ones really bad. Thank God in Christ we have redemption, RESTORATION, PROTECTION (oh He is our Cleft in the Rock) and ultimately we have VICTORY. He alone can heal and restore. He alone can truly save. After what Caleb and I have gone through I do not want to create a new foothold for the enemy in my heart because of imperfect judgment or anger toward anybody or anything. Even though it certainly is not easy to respond to a slight in love I am seeking to walk in the love of Christ for everyone involved in our health journey, historically or present. In Christ alone are we made whole and restored, in Christ alone we live and breathe. It is He Who holds my head above the waters, no matter how torrential they get. With His mighty right hand He draws me up out of the waves, me and my precious child and He walks out onto those raging waters for us. No amount of anger or bitterness is worth jeopardizing my intimacy or lifeline with Christ. I trust in Him to be perfect in judgment and in provision. He has and He will continue to contend with those that contend with me and to save my children.

… … …

Part of love is compassion and the Lord truly has helped me to have compassion in the sense that much of what The Lord desires for our bodies to manage it’s health is, I’m finding, very different than the practices of conventional western medicine today. There are many well-meaning doctors out there but to evaluate the health of someone in a more holistic manner or to evaluate for tongue tie is not something that they are trained for or often approve of, even by the very medical associations that they receive their certifications and legal protections from. In order to follow the guidance of the Holy Spirit in treating a patient, as it should be, they would have to deviate from standards of care which would essentially mean transforming their practice and identity and removing themselves from the legal and monetary protections of their earthly associations. I listened to several of the speakers during the recent Candida Summit and one of them was Jack Wolfson, a board certified cardiologist (19) that practiced conventionally for years. When he made the leap to integrate holistic medicine with his conventional training it meant leaving the hospital he worked at with guaranteed income from people’s insurance and stepping out in faith by opening a cash pay cardiology clinic. He now sees people from all over the world because there is such a demand for his kind but at the same time so very few (if any other) holistic cardiologists. Another reason I find in my heart compassion is that I now realize that every doctor, every formula company, every manufacturer for vaccines, antacids or pharmaceuticals, every one of them is not only accountable to their medical associations and peers etc…but they are also and ultimately even more-so accountable to God. People made in God’s image are entrusted to their care to try to heal or care for that image to make it healthy and to function optimally for the glory of God. In light of this I realize I am not their judge, they already have a judge who is the original Image Bearer and because, as mentioned, much of what they may be doing is damaging toward that precious image it is with the fear of God that I do have compassion. They too are made in God’s holy image and they too are infinitely precious to God. He is their Judge. He has got this in hand and so we must pray! We must pray for doctors and for the medical community to listen to the Holy Spirit, to the Great Physician. Pray for more awareness and acceptance in the medical community about the horrendous damage that can happen from a tongue tie that is undetected or left intact. Pray for the doctors that are out there trying to educate their peers like Dr. Ghaheri or Dr. Baxter. Pray for our individual protection and freedom from the enemy’s agenda to essentially mutilate the image of God with generation after generation of antibiotics, proton pump inhibitors, misinformed nutrition and more. Too many are listening to another voice, a voice that harms and damages the image of God. Oh how precious is the Lord and His image that we bear, and may He be eternally glorified in our bodies and in our love for one another.

Even in our love for our enemies.

We have the victory. We have Jesus.

40108918_2030108023678132_7386713471259246592_n

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For a list of symptoms and related conditions to tongue tie stay tuned for my next post.

References:
1. A HISTORY OF BABY FORMULA – HOW EMERGENCY BABY FOOD BECAME AN EVERYDAY MEAL FOR BABIES IN AMERICA
HTTP://DOMESTICGEEKGIRL.COM/UNCATEGORIZED/HISTORY-BABY-FORMULA-EMERGENCY-BABY-FOOD-BECAME-EVERYDAY-MEAL-BABIES-AMERICA/
2. A HISTORY OF INFANT FEEDING
HTTPS://WWW.NCBI.NLM.NIH.GOV/PMC/ARTICLECS/PMC2684040/
3. History of Tongue Tie
Baxter, Richard. Tongue Tied, How a Tiny String Under the Tongue Impacts Nursing, Speech, Feeding, and More. Alabama Tongue Tie Center, 2018. Page 5
4. Backlash Against Surgery
Baxter, Richard. Tongue Tied, How a Tiny String Under the Tongue Impacts Nursing, Speech, Feeding, and More. Alabama Tongue Tie Center, 2018. Page 6
5. Brazilian Law for Tongue Tie
Baxter, Richard. Tongue Tied, How a Tiny String Under the Tongue Impacts Nursing, Speech, Feeding, and More. Alabama Tongue Tie Center, 2018. Page 257
6. Dentist sheds light on tongue tie in infants
http://www.ourmilkyway.org/dentist-sheds-light-on-tongue-tie-in-infants/
7. Hospital Gag Orders on Lactation Consultants, Bobby Ghaheri MD
https://www.facebook.com/DrGhaheriMD/posts/357748484386534
8. The Tongue Was Involved, But What Was the Trouble?
https://leader.pubs.asha.org/article.aspx?articleid=2432362
9. The Risks of Not Breastfeeding for Mothers and Infants
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2812877/
10. The Largely Unknown Health Epidemic Affecting Almost ALL Americans
https://bodyecology.com/articles/unknown_health_epidemic.php
https://bodyecology.com/the-body-ecology-diet-book.html
11. Gut and Psychology Syndrome: Natural Treatment for Autism, Dyspraxia, A.D.D., Dyslexia, A.D.H.D., Depression, Schizophrenia
https://www.amazon.com/Psychology-Syndrome-D-D-D-H-D-Schizophrenia/dp/0954852028
12. Ways To Reverse Autoimmune Disease
https://www.amymyersmd.com/lp/ai-webinar-registration
13. What’s Causing Food Allergies?
https://bodyecology.com/articles/whats-causing-food-allergies
14. Webbed Fingers Syndrome: Is Tongue-Tie Linked to Vitamin A Deficiency?
https://www.drstevenlin.com/webbed-fingers-syndrome-tongue-tie-linked-vitamin-a-deficiency/
15. Weston A. Price, DDS
https://www.westonaprice.org/health-topics/nutrition-greats/weston-a-price-dds/
16. Tongue Tie and Crowded Teeth, Misaligned Jaws, Narrow Palates
Baxter, Richard. Tongue Tied, How a Tiny String Under the Tongue Impacts Nursing, Speech, Feeding, and More. Alabama Tongue Tie Center, 2018. Page 195-196
17. Do You Have The Gene Mutation That Affects 40% Of The World?
https://drwillcole.com/what-you-need-to-know-about-the-gene-mutation-that-affects-40-of-the-world/
18. Love Never Fails, Kenneth Copeland
https://www.amazon.com/Love-Never-Fails-10-pamphlets/dp/1575620944
19. Dr. Jack Wolfson
https://www.wolfsonintegrativecardiology.com/about/
20. Bible.com
https://www.bible.com/verse-of-the-day/PSA.91.2/385?version=1

 

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