“It would be like winning the lottery”…the doctor’s words sunk in slowly…Just the month prior I had immediately gone on an elimination diet when Caleb’s oxygen jumped up, lips turned red and swallowing issues disappeared when I put him “temporarily” on ready to feed alimentum. I had immediately put myself on the Dr. Sears elimination diet which takes out the top 8 allergens then later also taken out corn per the gi specialist’s recognition of why Caleb couldn’t handle the powdered version of the hypoallergenic formula…But it started to sound like “temporary” wasn’t such as easy word, although it can take up to 3 weeks for a food protein to be eliminated, the latest try for him to get back on my milk after a 3 week window was met with bumps all over his body and him itching his face and head while he was eating. And I had eliminated the elimination diet foods down to only lamb, zucchini and quinoa…then as I kept him on my milk he started itching between meals and in his sleep and the bumps started to stay and spread to more places. I was advised to keep him off my milk until allergy testing was accomplished…and to not get my hopes up, that typically in cases like this the allergen couldn’t be pinpointed. Another doctor told me that although he was a man of faith and wouldn’t say it was impossible that “it would be highly unusual” for Caleb’s allergies to be pinpointed and get on my breastmilk again…in all 3 doctors told me something along these lines.
However, God isn’t intimidated by the lottery and He is really into the highly unusual – in fact the impossible – like virgins giving birth and seas parting to expose dry land…THAT is MY GOD, the ONE TRUE GOD- as it says in Isaiah 41:10
“So do not fear, for I am with you; do not be dismayed, for I am your God. I will strengthen you and help you; I will uphold you with my righteous right hand.”
MY GOD is the King of the Universe, He is my adoptive Dad, and I because of that I’m seated in heavenly places with Christ. MY DAD up in Heaven has plans and thoughts about me that are for my good and for my welfare. I can trust Him. I do not need to be afraid. MY GOD healed my son in March when things were about to get unnecessarily invasive by showing us that the key to his healing was my baby’s diet…How little did I know what that healing journey would entail though, I thought it was immediately finished, done and golden in 3 weeks…Well, IT WAS FINISHED — in the spirit realm, but in order for Caleb’s healing to completely manifest I would have to and am actively waiting upon the Lord in prayer and in allowing Him to lead my mother’s intuition for what to feed my son.
I wish I could say that my faith never faltered but as days turned into weeks and weeks turned into months without being able to get Caleb back on my milk I would go back and forth between rock solid faith in His healing and rock solid faith that God would reveal to me what to eat and then back to battling fear, discouragement and despair – temptations to give up, to stop pumping…But God promises that if we stand firm in battle and raise that shield of faith that He will meet us there, even if our shield is as small as a mustard seed and He will shield us and protect us and boost our faith! I would cry out to God in tears and He would meet me there. I would praise Him and worship Him and He would meet me there. I would pray and pray and He would meet me there…
It is hard to pump every time you feed your baby formula and then because he is too small to sit on his own having to sit him in some sort of baby chair or device in order to pump even though they are a bit too big for him because I couldn’t lay him down due to his silent reflux…even if he fussed and wanted to be held and couldn’t understand why he had to sit there, or was bored being put in the same place over and over…it was heart breaking. Of course since I have to pump and bottle feed even when he is on my milk I was already having to do that, but with me having to put him through that and not even being able to use my milk — that is just extra hard. But let me say this, God provided! Caleb started sitting on his own at just 4 months!!! Typically this happens at 7 months. This allowed his muscle development and posture to be protected and for him to be able to be entertained and to play with more independence while I pumped. Thank you Lord!! God also provided Caleb with impressive head control ever since he was teeny tiny so when I was putting him in a chair at just 2 and 3 months he held his head up just fine, like a champ! He is a super strong little dude! Waking up in the middle of the night and early hours to pump even as he slept was not easy either, again not even being able to feed my baby the milk…but it was a lot easier not having to wake and feed my baby who is already a slow eater and then on top of that pumping. God would wake me up and help me get up without waking up Caleb so I could pump. God has allowed Caleb to sleep like a champ at night so even with the extra pump sessions to protect my supply, I still get enough sleep! Thank You Lord! It was also hard emotionally and physically as my meager diet took its toll on my body and mind with cravings and rapid weight loss, the tiredness, the hunger I felt at times as I desperately tried to eliminate as much as possible while also trying to get enough to eat, I just wanted to get a base point to start from so I could start adding food back in. I had eliminated viatmins and supplements due to corn content as well so I also knew I needed to start to add foods back in to protect my bones etc. plus the milk would need to have vitamins in it for Caleb. I had to pump no matter what even as my own body suffered and my baby had to endure shelf ready, highly processed food, and it was hard. BUT, I couldn’t give up, I felt strongly in my heart that my breastmilk was the key and that God knew the elusive combination.
Then on top of the strain of the elimination diet and pumping without feeding my own milk, his silent reflux started getting really bad ’cause his body could tell the milk protein was still there in the rtf alimentum even though they were essentially pre-digested in the form of hydrolysates. Formula was in his sinuses, coming out of his nose as he would sneeze and ultimately he started to refuse to eat because of the discomfort in his throat. He started to get constipated and his weight percentage stopped climbing as it should…I was given 2 weeks and if he didn’t stop refusing to eat after 2 to 4 ounces he would need to be “scoped” which meant anesthesia and intubation as a camera was placed down his throat…invasive loomed once again. This time it would have been necessary — but I certainly wanted to avoid it at all costs. The 2 week window would end before the allergy appointment even took place…which meant it seemed inevitable.
So my baby was barely eating ’cause his throat hurt from the stomach acid and food coming up into it and his sinuses, my attempts with only corn finished lamb, zucchini, quinoa and rice crackers had failed and I was supposed to wait until we saw the allergist which surely meant the scope. We were also about to run out of $420 worth of free hypoallergenic formula God had provided…I know God is perfect in his provision and that He was in charge so I decided to take the risk and try my milk again even though the specialist had warned me that his reactions were getting progressively more severe…I had been researching what causes baby allergies, whether it be in the gi tract or otherwise. During this process I had joined a Facebook group for the GAPS diet. One of the moms told me to consider salicylates. I had never heard of these but did some further research and since my current diet, which was nill to none, hadn’t worked I decided to try grass finished lamb that was processed with hot water (not vinegar), brussel sprouts, soaked and sprouted quinoa and a little maple syrup. I landed on this combination based on a severely limited version of an elimination diet called The Failsafe Diet which eliminates salicylates, amines and histamines. I decided to put my faith in God and try again and pray with all my heart for it to work…and…IT WORKED! PRAISE THE LORD IT WORKED!!! No itching, no bumps, no rash, no oxygen dips!
Selah (Let’s pause, reflect and just praise God here).
After getting him back on my milk I needed to get more fat back in my diet so I decided to try to add in avocado and “allergen free” chocolate…hives!!! Then Bok Choy…hives! and Jerusalem Artichoke, just a tiny bit…red rash and itching! I wasn’t completely convinced and sure about the salicylate connection though until Caleb tested negative on the skin prick tests which is expected with sals since it is this chemical in the foods versus the food protein. The only thing that connects zucchini to the foods that reacted after I got him back on my milk is salicylates. God helped me figure this out even though I am certainly not a trained allergist, gi doc or naturopath by any means. God knew the winning numbers and He showed me to help my baby who was reacting to every formula out there. THANK YOU LORD for protecting my milk supply, for the faith to keep me pumping, and for allowing my baby to thrive. I can never, ever, even come close to thanking you enough…
YOU OH LORD are my Baby’s HEALER, YOU are JEHOVAH RAPHA. You are the Banner of me which is Love and YOU ARE MY GOD.
Apparently baby food allergies begin in a compromised gut (outside of DNA determined conditions that is)…and antibiotics kill good gut flora (in addition to C-sections causing a gut that is not populated as it should be, thankfully this was not a factor for us to consider). I wish I had known about the affect of antibiotics though so I could have administered probiotics both in my diet and directly right after Caleb was in the PICU, then on caffeine, then on corn-free omeprazole. I wrote in my last post how there was a delay in into omeprazole until after his oxygen went up so I didn’t end up having to put him on it..
.turns out God was protecting Caleb from the regular version of the medicine because it contains corn and corn disables Caleb’s ability to swallow well, causing choking, gagging, coughing and ultimately a hard time breathing when combined with silent reflux due to other foods (this statement has been redacted, God told me to not give Caleb omeprazole because of the devastating affects of acid blockers to the gut microbiome, the redacted statement was false testimony and it has been made right in the blog post “take it back”). I do feel that his salicylate allergy appeared after the omeprozale was introduced, but I understand that medicine involves risks and benefits and his reflux was so bad that he needed it to protect his throat and its components, but there are the consequences. If it weren’t for getting the “secret combo” to a perfectly custom breastmilk we would be in real trouble. Caleb can’t swallow with Neocate and was in too much pain to eat well on ready to feed alimentum…plus the acid blocker meds were negatively affecting his gut flora and then with solids introduced at six months compromised stomach acid would prevent them from being digested enough before entering an already compromised gut. For more information on the details about the gut and its relation to allergies, intolerances, reflux and also autoimmune and neurological conditions (not just for babies!) I highly recommend you read the “Gut and Psychology Syndrome” book by Natasha Campbell-McBride. I really feel like God provided this information to me for Caleb’s healing as I, along with many others, prayed for that healing.
I know with all my heart that God can, has and still does supernaturally heal ailments. In a millisecond, he can and has raised the dead, healed the lamed, the blind, the barren, the possessed, in fact every person that came to Jesus for healing was healed. However, God also commanded the commander of armies, Naaman, to humble himself and dip in the filthy Jordan to be healed. Sometimes it takes work, it takes humility, it takes time, determination and sacrificial obedience—and most of all it takes determined, long-suffering faith for the healing to manifest. That is the path God has put Caleb and I on. It is not easy on our diet, for example Caleb is not allergic to peanuts or almonds, but peanuts and almonds are high in salicylates so I’m making cashew butter and cashew flour from scratch. I’m learning how to properly prepare food for optimal digestion of vitamins and minerals by soaking the nuts in salt, and soaking and lacto-fermenting grains and legumes with homemade breastmilk whey (it’s dairy free)…I’m learning A LOT and eating in ways I’ve never eaten before. God has provided everything we need. It is not a coincidence that a nearby farmer’s co-op provides corn free pork processed in hot water, including bones for bone broth and fat for making lard, they also provide soy and corn free eggs and that a local grocery store stocks locally grown fresh mung-bean sprouts, grass-finished water-processed lamb, and organic rutabaga which is low in sals and the latter an important ingredient for my baking and broths.
Will you join in me in praying for Caleb’s total and complete healing to manifest over the next few months? Caleb did test positive for corn with the patch testing as the gi doc had already determined plus a trace for wheat and he had some redness with dairy and egg whites which we have figured out both cause the bad reflux so they are intolerances. We are actually even now in recovery from egg whites because I had decided to try them and he had started to refuse to eat again, not just his bottles but food with spoons as well…so the winning combination: a corn free, dairy free, wheat free, egg white free, and low salicylate version of BABY GAPS (Gut and Psychology Syndrome) DIET is what we are on now. I’ve learned from other allergy baby moms that allergies can change. So please pray for Caleb’s to go away completely and for no new ones to surface, this means praying fro Caleb’s gut to heal and if there has been a blood/brain barrier breach for that to heal as well. Please pray for God to help his body and mind to allow him to receive the bone broth and other key healing foods that he needs. His pediatrician let me know that between 6 and 9 months is a critical time for digestive enzymes to start to populate a baby’s gut that weren’t present before, but there hasn’t been a lot of research on how this is triggered and happens. For some GAPS patients they have to be on probiotics and enzymes their whole lives, please pray for Caleb’s gut flora and enzymes to be restored, this is critical to his total healing. I’m so thankful God revealed so many answers for Caleb so early. His pediatrician told me at his 4 month well-baby that it is highly unusual for so many things to have been figured out so early-on. Prayer makes all the difference between health and oppression. Thank you for your prayers. Prayers have made all the difference, literally from Caleb’s first breathe. Thank you Lord.
I am humbly grateful to JEHOVAH JIREH, my Provider, My Hope, My Victory, My Son’s Healer.
May all praise, and all glory and all honor that ever leaves my lips be forever and only to the King of Kings and the Lord of Lords. Praise Him.